Sunday, May 15, 2011

"lyme tired"

It's almost 3am, and I'm happily studying for my economics final exam. I'm happy because I'm feeling pretty great energy and strength wise. I feel simultaneously able to go to sleep, or run a few miles. I realize as I have that thought, that this is how I used to feel all the time. I would get tired, I would want to go to bed, but I would have physical strength. My current state, although it's doesn't always work this well, is due to the Cymbalta I'm taking. I've often struggled to describe the kind of fatigue that I have from lyme. In January, I did a little experiment in which I counted how many push-ups I could do each day. Some days I would be exhausted by 5, some days, I was still feeling strong when I finished at 30. The problem isn't a fatigue that causes lethargy that leads to muscle loss - I have all the muscle to do all 30 each day. The problem is that somehow, on some days, our body won't let us use the muscles. I don't know much at all about the physiology of how all this works. What I do know is that the Cymbalta drug I'm taking is a norepinephrine and serotonin reu-ptake inhibitor class anti-depressant. According to all the official websites out there, people don't know how this stuff actually works in your brain. On less official (but more awesome - crazymeds.com) websites I've read that it coats your neurons and that's how it helps with my nerve pain. Anyways, even though I still get tired very often on the Cymbalta, ever since going on it, I've always felt STRONG and ABLE. Before going on it, I felt like you feel when you can't open a jar in your kitchen, but about everything. Anyways, just getting this out there, while this moment of clarity lasts - so I can reference this later. :-) I tend to forget how I actually FELT in the past, but only remember how certain pain/fatigue affected me, or how I described it.

Monday, May 9, 2011

one thing at a time.

Recently I've been finding myself overwhelmed with the number of tasks, to the point that I end up ineffective at everything. Half the solution was just realizing the problem's root. Now when I sit down at my desk and start to freeze up, I just pause and clear my mind - then I think of one project to get started on. I've also made a couple changes to my work structure...

- Turned Spaces off on my Macbook
- Don't open a ton of Safari tabs to read later
- Cut my Google Reader down to 15 blogs
- Make new tasks lists for the day, or for the evening
(instead of just looking at the master list again and again).

Wednesday, April 27, 2011

watch stuff grow.

I recently spent a half hour finding this article online. It's a favorite of mine - I read it back when I wasn't doing so well in the Fall with being sick, struggling with the depression and change of it all, and just an overall sense of failure that came with my new limits. http://articles.latimes.com/2010/sep/21/opinion/la-oe-weaver-pumpkins-20100921

xoxo
Hope you are well.

Wednesday, April 20, 2011

THESE DAYS (april'11)

These days..

I'M OBSESSED WITH
- using grocery bags as a shower cap
- jergens body lotion, xoxo
- scrubbing down my skin with my loofa
- KIND fruit and nut bars
- glitter nail polish

I'M DOING SWELL AT
- keeping room clean; laundry all put away
- taking my vitamins every day
- crazy good dental hygiene: brush, floss, tongue-scrape, rinse.
- staying calm and relaxed about life and responsibilities

NEED TO PICK UP MY SLACK IN
- making my bed
- going to my govt job. flexibility = lazy brielle.
- going to more of my college classes
- reading my economics books

I'M LISTENING TO
- "Falling In" by Lifehouse
- "Colder Weather" by Zac Brown Band
- "Somewhere with You" by Kenny Chesney

--
in time of daffodils who know
the goal of living is to grow
- ee cummings

Tuesday, April 19, 2011

Sunday, April 17, 2011

you get through.

There's something surprisingly empowering about getting through a rough time. Even if you tripped a couple times, messed up, and cried a lot of tears - you got through, and it was good. There's a kind of fearless about the future that is born. It's not that you don't care, or cannot be hurt. There are plenty of hopes and fears; dreams are the potential for disappointments. No, it's not a crazed rushing ahead, or a dull-hearted apathy. You just know that no matter what happens, you'll hold on, and you'll get through, and you'll love, and it will be good.

I remember towards the end of my summer of antibiotics, a few days before going off of them, I realized that I had made it through, that I had won. And then I realized, we cannot lose. What is winning? Staying alive? Not losing our faith? Getting up despite stumbles and falls? Because of the Holy Spirit in me, no matter what, I won't be let go. No matter how I react, he will redirect my gaze. No matter what happens in my body, I will be brought safely home.

Sunday, April 10, 2011

One year with lyme.

These last two weeks I have been celebrating my 1 year anniversary with lyme disease.

I'm much calmer about life these days. I've found that most everything can be put back together. And, when they cant be put together and we fall apart at the loss and change, we can be put back together.

This means you don't have to worry about failing, messing up, letting people down, or ruining your life. Just plant seeds in whatever season you find yourself in. Trust God to make things grow, rejoice when he does, submit to his pruning, and trust when you don't know how the seeds will take root.

One of my favorite life-will-be-okay-songs to listen to is Rob Thomas' "Little Wonders." Our lives are made of "these little wonders - these twists and turns of fate." I really, really don't like lyme disease. It's annoying. But this little twist has been a wonder. I love how far I've come, and don't regret this last year. My life, and my person has changed and morphed in good ways. I'm calm, I trust the Lord more, I'm not as obsessed with my works and abilities. Most of all, there's this deep love and happiness. I'm am often weary of life, yet there's this different sort of happiness, it's calm and steady love for God and others that causes me to enjoy the days here.

Looking ahead still scares me a lot. I have no idea how certain things are going to fall into place this year, let alone for the rest of my life with this disease. I can give my babies lyme through the freaking placenta and breast milk. (a. yes i just said that and b. yes i think way to far ahead..) But I know that a year ago, this year looked like darkness, and that darkness has turned to light. Tomorrow, and 20 years from now, will be the same way.

And man, it feels good to be done with year 1.

Wednesday, March 16, 2011

the miracle of tryptophan

Two things that I never thought I would find extraordinary:
- I have only cried once a week the last two weeks
- Each time, the trigger and feeling happy again afterwards, all happened within 5 minutes.

Rewind to all of the Fall semester when it was great to only cry five days out of seven, and when an attack would mean 2.5 hours intense tears. (Due to my Lyme and remnants from the medications I took in the Summer).

I learned so much during that time, but am still so happy to be through it, and back to normal. The ability to be upset, and then think about something else, and be okay - it's a chemical miracle to me now.

Tuesday, January 11, 2011




my word of the year: step
(more coming. it's written in my journal, just have to type it up.)